Ehlers Danlos Syndrome consciousness month

Might is Ehlers Danlos Syndrome consciousness month. Ehlers Danlos Syndrome (EDS) is a bunch of problems of the connective tissues. Connective tissue is discovered all through the physique, so the entire physique will be affected as a result of defects within the construction and biosynthesis of collagen. There are 13 subtypes of EDS, however the commonest is Hypermobile EDS (or hEDS), which is the kind I’ve. Dysautonomia and MCAS (mast cell activation syndrome) are frequent comorbidities; I’ve each, having hit the trifecta jackpot!

Signs

The principle signs of hEDS are ache, fatigue, allergic reactions, gastric points, joint laxity, muscular ache, stretchy pores and skin, dizziness, mind fog, issues with proprioception, migraines, ADHD… In my case, this interprets as: Numerous fractures, sprains and dislocations; continuously strolling into door frames; with the ability to spot somebody carrying fragrance from 500 meters, and a mind so distracted that thirty tabs are open, lights are flashing, and the music is on full blast at anybody time. I additionally faint if I’ve to face nonetheless for any size of time, which makes for nice enjoyable at border management! (I’m actually promoting myself right here ;-))

I used to be identified in with hEDS in late 2021, after The Vaccine exacerbated my signs to a degree the place I might not ignore them. Good vitamin is completely paramount to managing Ehlers Danlos, as so most of the issues are of a gastrointestinal and allergic nature. Making an allowance for that the goal is to scale back immune reactions, normalise intestine micro organism and assist digestion, absorption and metabolism, it’s greatest to restrict sugar and refined carbohydrates, hold processed meals to an absolute minimal and take into account chopping out gluten.

Train can be key, and fortunately for me, driving is particularly helpful. Issues like yoga, strolling, biking and swimming are additionally very useful, though I’ve to watch out with yoga as I’m very vulnerable to subluxations of the hips and shoulders.